A 6-Year-Old Girl, the World's First In-Brain Gene-Editing Trial, and a Top Nature Paper: A Tragedy That Shouldn't Be Forgotten
A 6-year-old girl with a non-fatal genetic condition became the world's first patient to receive in-brain base editing. Seven days later she died — and her death stayed hidden for over a year, even as the research appeared in Nature. Here's what happened, from the primary sources.